Plan de Atención Integral a personas afectadas por los Síndromes de Sensibilización Central (SSC): Fibromialgia (FM), Síndrome de Fatiga Crónica (SFC), Sensibilidad Química Multiple (SQM) y Electrohipersensibilidad (EHS).

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Huella Solidaria


Trabajamos por la mejora de la calidad de vida de las personas afectadas de FM, SFC, SQM y EHS de Gipuzkoa. Les prestamos ayuda, apoyo, formación e información, divulgando el conocimiento de estas enfermedades entre la sociedad, y reivindicando los derechos socio-laborales de este colectivo. Para ello:


1. Actividades de Atención y Orientación, realizadas en los locales de atención de la Asociación. 


2. Actividades Divulgativas:


   - Charlas: intentamos realizar una charla al mes en diferentes municipios de la provincia.


   - Medios de comunicación.


   - Biblioteca y documentos audiovisuales, disponible en la sede central para cualquier socios que lo requiera. 


3. Actividades Informativas: Conferencias. Al menos una vez al año, intentamos ofrecer a nuestros socios conferencia de profesionales relacionados con nuestras enfermedades. Normalmente se realizan en Donostia-San Sebastián. 


4. Actividades Lúdicas:


   - Cafés-reunión, oportunidad para compartir experiencias. Se organiza una cada 2-3 meses en el local de Donostia-San Sebastián y también antes o después de cada charlas.


   - 12 de mayo: día mundial de las enfermedades, con motivo del día mundial colocamos mesas informativas en los centros de salud y hospitales de la provincia. Para ello, solicitamos ayuda a nuestros socios para poder estar presentes en el mayor número de centros posible.


   - Aniversario de Bizi Bide, celebrado en noviembre y normalmente en Donostia-San Sebastián, ocasión para juntarnos todos los socios que así lo deseen. Primero tiene lugar una conferencia o en su defecto una charla con las últimas novedades e investigaciones y después damos paso a un almuerzo. 


5. Actividades Terapéuticas:


   - Terapia en Agua Caliente: realizada en Donostia-San Sebastián, Tolosa y Bergara durante todo el año exceptuando julio, agosto y septiembre.


   - Fisioterapia Grupal/Higiene Postural, ofertada en los municipios donde la asociación dispone de local y salga grupo, durante todo el año. Actualmente solo hay grupo en Donostia-San Sebastián.


   - Fisioterapia Individual, ofertada en los municipios donde la asociación dispone de local, durante todo el año.


   - Terapia Psicológica Individual, ofertada en los municipios donde la asociación dispone de local, durante todo el año.


   - Coaching-Autogestión, ofertada en los municipios donde la asociación dispone de local, durante todo el año.


   - Terapia de Grupo, ofertada en los municipios donde la asociación dispone de local y salga grupo, durante todo el año. Actualmente solo hay grupo en Donostia-San Sebastián y Eibar.


   - Taller de manualidades, ofertada en los municipios donde la asociación dispone de local y salga grupo, durante todo el año. Actualmente solo hay grupo en Donostia-San Sebastián y Eibar


   - Taller de Inteligencia Emocional, se realiza cuando y donde se forma grupo interesado en ello.


   - Reiki: se realizada una vez por semana en el local de Donostia-San Sebastián durante todo el año.


   - Chikung: se realizada dos días a la semana en el local de Donostia-San Sebastián durante todo el año. 


6. Actividades Formativas:


   - Formación del Voluntariado, se realiza cuando y donde se forma grupo interesado en ello.


   - Formación de los Profesionales, se acude a jornadas, cursos y/o congresos que se estiman interesantes para la asociación. 


7. Actividades Reivindicativas:


   - 12 de mayo, día mundial de las enfermedades. Día de reivindicación en la calle y medios de comunicación. 


Todas las actividades se organizan, gestionan y coordinan a través de la oficina administrativa. 


El socio cuando se acerca a nuestra asociación, primero se le realiza una primera atención dándole información y orientación y derivándole a los diferentes recursos que ofrece Bizi Bide o a otras instituciones en el caso que así se estime necesario. Tras esta primera acogida es la persona quien decide en que actividades y/o terapias participar. El profesional responsable de cada actividad/terapia realiza un seguimiento y evaluaciones periódicas. Del mismo modo, la trabajadora social llevará un seguimiento de los socios. 


OBJETIVOS


-Mejorar la calidad de vida y el grado asistencial de este colectivo de enfermos con patologías graves y poco reconocidas tanto por la sociedad en general como por las administraciones, sistema sanitario, jurídico,…


-Divulgar las enfermedades para crear una mayor conciencia social y ofrecer información seria y contrastada sobre ellas.


-Reclamar a las instituciones competentes los medios y las políticas de atención sociosanitaria necesarias para garantizar una asistencia médica adecuada y efectiva donde todos los profesionales implicados cuenten con la información y la formación para poder llevar a cabo esta atención específica.


-Potenciar terapias y dinámicas de autoayuda para hacer frente a las enfermedades.


-Impulsar y participar en las investigaciones que se realicen sobre estas enfermedades.


-Trabajar para impulsar los estudios jurídicos que definan y den vías de solución a los problemas socio-laborales derivados de estas enfermedades.


-Desarrollar actividades que permitan mejorar la calidad del servicio que se ofrece a las personas afectadas.


-Defender el derecho a ser atendidos con la garantía de que se nos trate con el respeto que como personas enfermas merecemos. El desconocimiento sobre estas patologías y la falta de recursos para afrontarlas nos coloca, a menudo, en situaciones de desamparo y en grave riesgo de exclusión. 


DIRIGIDO A


Dirigido a personas afectadas por los Síndromes de Sensibilización Central (SSC): Fibromialgia (FM), Síndrome de Fatiga Crónica (SFC), Sensibilidad Química Multiple (SQM) y Electrohipersensibilidad (EHS). Familiares y sociedad en general.


 


 


 


 


 


 


 


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SELECT html_data
FROM phpfox_theme_template
WHERE folder = 'tm_base5' AND type_id = 'block' AND module_id = 'pages' AND name = 'joinpage.html.php'
/* OO Query */
IdSelect TypeTableTypePossible KeysKeyKey LenRefRowsExtra
1SIMPLEphpfox_theme_templatereftheme_id,theme_id_2,foldertheme_id176const,const,const1Using index condition; Using where
0.0002482 | Memory Before: 22 Mb | Memory After: 22.01 Mb | Memory Used: 3.16 kb | Rows: 0 | Slave: Yes
SELECT html_data
FROM phpfox_theme_template
WHERE folder = 'tm_base5' AND type_id = 'layout' AND name = 'search.html.php'
/* OO Query */
IdSelect TypeTableTypePossible KeysKeyKey LenRefRowsExtra
1SIMPLEphpfox_theme_templatereftheme_id,theme_id_2,foldertheme_id176const,const,const1Using index condition
0.0002348 | Memory Before: 22.02 Mb | Memory After: 22.02 Mb | Memory Used: 3.16 kb | Rows: 0 | Slave: Yes
SELECT html_data
FROM phpfox_theme_template
WHERE folder = 'tm_base5' AND type_id = 'block' AND module_id = 'core' AND name = 'template-contentclass.html.php'
/* OO Query */
IdSelect TypeTableTypePossible KeysKeyKey LenRefRowsExtra
1SIMPLEphpfox_theme_templatereftheme_id,theme_id_2,foldertheme_id176const,const,const1Using index condition; Using where
0.0002232 | Memory Before: 22.02 Mb | Memory After: 22.02 Mb | Memory Used: 3.16 kb | Rows: 0 | Slave: Yes
SELECT html_data
FROM phpfox_theme_template
WHERE folder = 'tm_base5' AND type_id = 'layout' AND name = 'error.html.php'
/* OO Query */
IdSelect TypeTableTypePossible KeysKeyKey LenRefRowsExtra
1SIMPLEphpfox_theme_templatereftheme_id,theme_id_2,foldertheme_id176const,const,const1Using index condition
0.0002260 | Memory Before: 22.03 Mb | Memory After: 22.03 Mb | Memory Used: 3.16 kb | Rows: 0 | Slave: Yes
SELECT html_data
FROM phpfox_theme_template
WHERE folder = 'tm_base5' AND type_id = 'controller' AND module_id = 'pages' AND name = 'view.html.php'
/* OO Query */
IdSelect TypeTableTypePossible KeysKeyKey LenRefRowsExtra
1SIMPLEphpfox_theme_templatereftheme_id,theme_id_2,foldertheme_id176const,const,const1Using index condition; Using where
0.0005879 | Memory Before: 24.96 Mb | Memory After: 24.96 Mb | Memory Used: 5.42 kb | Rows: 0 | Slave: Yes
SELECT u.user_id, u.profile_page_id, u.server_id AS user_server_id, u.user_name, u.full_name, u.gender, u.user_image, u.is_invisible, u.user_group_id, u.language_id, u.last_activity
FROM phpfox_pages_admin AS pa
     JOIN phpfox_user AS u
            ON(u.user_id = pa.user_id)

WHERE pa.page_id = 112
/* OO Query */
IdSelect TypeTableTypePossible KeysKeyKey LenRefRowsExtra
1SIMPLE   MISSING KEY    Impossible WHERE noticed after reading const tables
0.0001371 | Memory Before: 24.96 Mb | Memory After: 24.96 Mb | Memory Used: 3.17 kb | Rows: 0 | Slave: Yes
SELECT html_data
FROM phpfox_theme_template
WHERE folder = 'tm_base5' AND type_id = 'layout' AND name = 'block.html.php'
/* OO Query */
IdSelect TypeTableTypePossible KeysKeyKey LenRefRowsExtra
1SIMPLEphpfox_theme_templatereftheme_id,theme_id_2,foldertheme_id176const,const,const1Using index condition
0.0001290 | Memory Before: 24.96 Mb | Memory After: 24.97 Mb | Memory Used: 3.15 kb | Rows: 0 | Slave: Yes
SELECT html_data
FROM phpfox_theme_template
WHERE folder = 'tm_base5' AND type_id = 'block' AND module_id = 'pages' AND name = 'admin.html.php'
/* OO Query */
IdSelect TypeTableTypePossible KeysKeyKey LenRefRowsExtra
1SIMPLEphpfox_theme_templatereftheme_id,theme_id_2,foldertheme_id176const,const,const1Using index condition; Using where
0.0001290 | Memory Before: 24.97 Mb | Memory After: 24.97 Mb | Memory Used: 3.18 kb | Rows: 0 | Slave: Yes
SELECT html_data
FROM phpfox_theme_template
WHERE folder = 'tm_base5' AND type_id = 'block' AND module_id = 'pages' AND name = 'admin.html.php'
/* OO Query */
IdSelect TypeTableTypePossible KeysKeyKey LenRefRowsExtra
1SIMPLEphpfox_theme_templatereftheme_id,theme_id_2,foldertheme_id176const,const,const1Using index condition; Using where
0.0002301 | Memory Before: 24.98 Mb | Memory After: 24.99 Mb | Memory Used: 3.15 kb | Rows: 0 | Slave: Yes
SELECT html_data
FROM phpfox_theme_template
WHERE folder = 'tm_base5' AND type_id = 'base5' AND module_id = 'core' AND name = 'block/template-menufooter.html.php'
/* OO Query */
IdSelect TypeTableTypePossible KeysKeyKey LenRefRowsExtra
1SIMPLEphpfox_theme_templatereftheme_id,theme_id_2,foldertheme_id176const,const,const1Using index condition; Using where
Session
Array
(
    [session] => e1c7c23a796b5e77ae59ab400bc28db2
    [redirect] => /pages/112
    [socialintegration_pageId] => 112
)
Cookie
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